Juvenile Scleroderma Working Group

Dr. med. Ivan Foeldvari

First project of the group is to develop a pediatric CRIS response index.

Secondary project is to establish a consent, which other domains and with which instruments, adapted to the pediatric issues, should be assessed.

We had two consensus meetings outside of the SCTC framework and the third is organized on the 2 nd of December 2018 in Hamburg and hopefully, we will have a meeting at the SCTC meeting 2019.

We have a meeting during the ACR in Chicago on 22th of October in Chicago.

We are not working on grants yet, but it would be very important to have a grant, which supports the juvenile scleroderma inception cohort from 10/2020

Contact

Dr. med. Ivan Foeldvari  sprechstunde@kinderrheumatologie.de

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