Gastrointestinal Working Group

Summary of goals/project(s) of working group:

  • Goal: International collaboration to address GI disease in SSc.
  • Project: The University of Michigan received funding in 2015 to create an international Research Electronic Data Capture (REDCap) database, which is a National Institute of Health (NIH) sponsored database which is a secure, web-based application designed exclusively to support data capture for research studies. This database assesses the psychometric properties of various GI-specific patient reported outcome measures in 5 conditions—gastroesophageal reflux disease (GERD), gastroparesis, constipation, small intestinal bowel overgrowth (SIBO), and fecal incontinence (FI).

Progress to date for working group:

GI WG

Next steps:

  • Hypothesis driven research that includes more sites and experts in the field.

What are expected deliverables and timelines for grant/working group?

  • To be determined at the ACR SCTC GI working group meeting. Some ideas discussed on last working group call were observational versus mechanistic studies.

Contact information for how can members get involved:

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