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SCTC Site Infrastructure Database

The SCTC Site Infrastructure Database provides site-level information that can be shared with pharmaceutical companies or academic centers for design & feasibility assessment when planning large-scale, international clinical trials.


It captures and regularly updates sixty data elements of information on patient characteristics, available resources and infrastructure, as well as practice patterns in the SCTC and EUSTAR centers. 


The database has been updated four times so far ( Feb 2019, Dec 2019, Oct 2021, and Oct 2022) and currently includes data from 138 centers.

These are some examples on the type of information included in the database.

Geographic distribution of centers that updated their records in October 2022
Average number of returning SSc patients per year
What percentage of the patients have diffuse systemic sclerosis?
Preferred treatment for SSc-ILD based on October 2022 update
OPEN SOON

SCTC Benedict Visiting Fellowship Programme

The 2025 Request for Funds Application for the SCTC and SRF sponsored Betty Z. Benedict Grant is OPEN

Get involved

You can contribute to scleroderma research in several ways: