Members

North America

USA

Alabama

University of Alabama at Birmingham
Birmingham, AL
USA

Primary Investigator: Amanda Schnell
Secondary Investigators: S. Louis Bridges, Jr., S. Ledbetter

Arizona

Mayo Clinic, Arizona
Scottsdale, AZ
USA

Primary Investigator: Leroy Griffing


University of Arizona Arthritis Center
Tucson, AZ
USA

Primary Investigator: Raphael Grau

California

Pacific Arthritis
Los Angeles, CA
USA

Primary Investigator: Daniel Furst


Stanford University
Stanford, CA
USA

Primary Investigator: Lorinda Chung
Secondary Investigator: David Fiorentino, Tamiko Katsumoto


University of California, Los Angeles
Los Angeles, CA
USA

Primary Investigator: Philip Clements
Secondary Investigators: Suzanne Kafaja, Elizabeth Volkmann


University of California, San Francisco
San Francisco, CA
USA

Primary Investigator: Francesco Boin
Secondary Investigators: Kari Connolly, Anna Haemel 

Colorado

National Jewish Health
Denver, CO
USA

Primary Investigator: Mehrnaz Maleki Fischbach
Secondary Investigators: Richard Meehan, Jeffery Swigris, Joshua Solomon, Isabell Amigues, Amy Olson, Rebecca Keith, Liudmila Kastsianok


University of Colorado
Aurora, CO
USA

Primary Investigator: Jason Kolfenbach
Secondary Investigator: Melissa Griffith

Connecticut

University of Connecticut
Mansfield, CT
USA

Primary Investigator: Santhanam Lakshminarayanan


Yale University School of Medicine
New Haven, CT
USA

Primary Investigator: Monique Hinchcliff
Secondary Investigator: Miruna Carnaru

District of Columbia

The George Washington University
Washington, DC
USA

Primary Investigator: Victoria Shanmugam


Georgetown University Medical Center
Washington, DC
USA

Primary Investigator: Virginia Steen

Florida

University of Miami Miller School of Medecine
Miami, FL
USA

Primary Investigator: Eric Greidinger
Secondary Investigators: Dana P. Ascherman, Marilyn K. Glassberg, Bethly Aubourg, Maria Boulina, Elana Oberstein

Illinois

Northwestern University
Chicago, IL
USA

Primary Investigator: Sarah Fantus
Secondary Investigators: Jane Dematte D'Amico, Mary Carns


University of Illinois, Chicago
Chicago, IL
USA

Primary Investigator: Nadera Sweiss
Secondary Investigator: Suncica Volkov

Louisiana

Louisiana State University Shreveport
Shreveport, LA
USA

Primary Investigator: Samina Hayat


Tulane University School of Medecine
New Orleans, LA
USA

Primary Investigator: Lesley Ann Saketkoo
Secondary Investigator: Matt Lammi

Maryland

John Hopkins Medecine
Baltimore, MD
USA

Primary Investigator: Fredrick Wigley
Secondary Investigators: Laura Hummers, Zsuzsanna McMahan, Julie Paik, Ami Shah, Christopher Mecoli

Massachusetts

Boston University
Boston, MA
USA

Primary Investigator: Andreea Bujor
Secondary Investigator: Marcin Trojanowski


Massachusetts General Hospital
Boston, MA
USA

Primary Investigator: Flavia Castelino
Secondary Investigators: Marcy Bolster, Sarah Schoenfeld

Michigan

University of Michigan
Ann Arbor, MI
USA

Primary Investigator: Dinesh Khanna
Secondary Investigator: Vivek Nagaraja


West Michigan Rheumatology, PLLC
Grand Rapids, MI
USA

Primary Investigator: Richard Martin
Secondary Investigators: Andrew J. Head, Aaron T. Eggebeen, Eric T. Slavin

Minnesota

Mayo Clinic, Minnesota
Rochester, MN
USA

Primary Investigator: Ashima Makol
Secondary Investigators: Thomas Osbron, Shreyasee Amin, Alicia Hinze


University of Minnesota Twin Cities
Minneapolis, MN
USA

Primary Investigator: Jerry Molitor

Nebraska

University of Nebraska Medical Center
Omaha, NE
USA

Primary Investigator: Marcus Snow
Secondary Investigator: Michael Feely

New Hampshire

Dartmouth College
Hanover, NH
USA

Primary Investigator: Michael Whitfield
Secondary Investigators: Nicole Orzechowski, Swamidiba Ayyappa

New Jersey

Rutgers Robert Wood Johnson Medical School
New Brunswick, NJ
USA

Primary Investigator: Vivien Hsu
Secondary Investigator: Deborah McCloskey

New York

Albany Medical College
Albany, NY
USA

Primary Investigator: Lee Shapiro
Secondary Investigators: Vivek Mehta, Jessica Farrell, Roberta Lukasiewicz


Columbia University
New York City, NY
USA

Primary Investigator: Elana Bernstein


Hospital for Special Surgery
New York City, NY
USA

Primary Investigator: Robert Spiera
Secondary Investigators: Jessica Gordon, Elizabeth Soto-Cardona


Northwell Health
Great Neck, NY
USA

Primary Investigator: Sonali Narain
Secondary Investigator: Richard Furie

North Carolina

Duke University School of Medecine
Durham, NC
USA

Primary Investigator: Ankoor Shah
Secondary Investigators: Bill St. Clair, Keith Sullivan

Ohio

Cleveland Clinic
Cleveland, OH
USA

Primary Investigator: Soumya Chatterjee


University of Cincinnati
Cincinnati, OH
USA

Primary Investigator: Surabhi Agarwal-Khanna
Secondary Investigators: Jean Elwing, Nishant Gupta, Gaurav Khanna, Satish Madala, Francis X. McCormack


University of Toledo
Toledo, OH
USA

Primary Investigator: Bashar Kahaleh
Secondary Investigator: Nezam Altorok

Pennsylvania

Thomas Jefferson University
Philadelphia, PA
USA

Primary Investigator: Sergio Jimenez
Secondary Investigator: Fabian Mendoza


University of Pennsylvania
Philadelphia, PA
USA

Primary Investigator: Peter A. Merkel
Secondary Investigators: Chris Derk, Colin Ligon, Nora Sandorfi


University of Pittsburgh
Pittsburgh, PA
USA

Primary Investigator: Robyn Domsic
Secondary Investigators: Thomas Medsger, Robert Lafyatis, Dana Ivanco

Rhode Island

Rhode Island Hospital
Providence, RI
USA

Primary Investigator: Edward Lally

South Carolina

The Medical University of South Carolina
Charleston, SC
USA

Primary Investigator: Richard Silver
Secondary Investigators: Edwin A. Smith, Faye N. Hant, Celine Ward, Katherine C. Silver, Terrill Huggins, Rahul Argula, Ryan Tedford


Scleroderma Research Consultants
Aiken, South Carolina
USA

Primary Investigator: James Seibold
Secondary Investigators: Laura Carbone, Brian Le

Tennessee

Vanderbilt University
Nashville, TN
USA

Primary Investigator: Leslie Crofford
Secondary Investigators: April Barnado, Lisa Lancaster, Kristine Phillips

Texas

University of Texas, McGovern Medical School
Houston, TX
USA

Primary Investigator: Maureen Mayes
Secondary Investigators: Shervin Assassi, Brian Skaug

Utah

University of Utah
Salt Lake City, UT
USA

Primary Investigator: Tracy Frech

Washington

Seattle Rheumatology Associates
Seattle, WA
USA

Primary Investigator: Daniel Furst

Wisconsin

Medical College of Wisconsin
Milwaukee, WI
USA

Primary Investigator: Mary Ellen Csuka
Secondary Investigators: David Gazeley, Amy Blair


University of Wisconsin
Madison, WI
USA

Primary Investigator: Kevin McKown

Canada

Alberta

University of Alberta
Edmonton, AB
Canada

Primary Investigator: Mohammed Osman
Secondary Investigator: Niall Jones


University of Calgary
Calgary, AB
Canada

Primary Investigator: Sharon LeClercq
Secondary Investigators: Marvin Fritzler, Jan Storek, Caylib Durand, Kareem Jamani

Nova Scotia

Dalhousie University
Halifax, NS
Canada

Primary Investigator: Evelyn Sutton

Ontario

University of Toronto
Toronto, ON
Canada

Primary investigator: Sindhu Johnson MD PhD
Secondary investigators: Edward Keystone, Zareen Ahmad


University of Western Ontario
London, ON
Canada

Primary Investigator: Janet Pope
Secondary Investigators: Jason Lee, Andreu Fernandez

Quebec

University of Montreal
Montreal, QC
Canada

Primary Investigator: Jean Luc Senecal
Secondary Investigators: Tamara Grodzicky, Martial Koenig, Sabrina Hoa, Eric Rich


Montreal Jewish General Hospital
Montreal, QC
Canada

Primary Investigator: Murray Baron
Secondary Investigators: Marie Hudson, Genevieve Gyger



Mexico

Mexico City

Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran
Mexico City
Mexico

Primary Investigator: Tatiana Rodriguez
Secondary Investigators: Gabriela A. Hernandez-Molina, Hilda E. Fragoso-Loyo

South America

Brazil

Federal University of São Paulo
São Paulo
Brazil

Primary Investigator: Cristiane Kayser


Rio de Janeiro State University
Rio de Janeiro
Brazil

Primary Investigator: Veronica Silva Vilela
Secondary Investigator: Claudia Henrique da Costa, Roger Levy, Rogerio Rufino 

Chile

Pontificia Universidad Católica de Chile
Santiago
Chile

Primary Investigator: Antonia Maria Valenzuela Vergara
Secondary Investigators: Cristian Vera Kellet, Carolina Llanos

Europe

Belgium

Ghent University
Gent
Belgium

Primary Investigator: Vanessa Smith


University Hospital Leuven
Leuven
Belgium

Primary Investigator: Ellen De Langhe
Secondary Investigators: Jan Lenaerts, Rene Westhovens

Croatia

University of Split
Split
Croatia

Primary Investigator: Mislav Radic

 

Denmark

Aarhus University Hospital
Aarhus
Denmark

Primary Investigator: Anne Braae Olesen


 University Hospital of Copenhagen
Copenhagen
Denmark

Primary Investigator: Soren Jacobsen
Secondary Investigators: Christopher Tandrup Nielsen, Mette Mogensen

Germany

Hamburger Zentrum für Kinder- und Jugendrheumatologie
Hamburg
Germany

Primary Investigator: Ivan Foeldvari


University of Cologne
Koln
Germany

Primary Investigator: Nico Hunzelmann
Secondary Investigator: Pia Moinzadeh


University of Erlangen
Erlangen
Germany

Primary Investigator: Jorg Distler

France

Assistance Publique Hôpitaux de Paris
Paris
France

Primary Investigator: Luc Mouthon
Secondary Investigator: Yannick Allanore


Centre Hospitalier Régional Université de Lille
Lille Cedex
France

Primary Investigator: Eric Hachulla
Secondary Investigators: David, Launay, Vincent Sobanski, Sébastien Sanges


Centre Hospitalier Universitaire de Rennes
Rennes
France

Primary Investigator: Patrick Jégo
Secondary Investigators: Alain Lescoat, Claire Cazalets, Alice Ballerie


Hôpital Saint-Louis
Paris
France

Primary Investigator: Dominique Farge


Grenoble University Hospital

Grenoble
France

Primary Investigator: Sophie Blaise
Secondary Investigator: Bernard Imbert, Jean-Luc Cracowski


Strasbourg University Hospital

Strasbourg
France

Primary Investigator: Thierry Martin
Secondary Investigators: Emmanuel Chatelus, Vincent Poindron, Jean Sibilia


Université de Nantes
Nantes
France

Primary Investigator: Christan Agard


University of Paris V, Faculty of Medecine
Paris
France

Primary Investigator: Andre Kahan

Hungary

Pecs Medical School
Pecs
Hungary

Primary Investigator: László Czirijack


University of Szeged
Szeged
Hungary

Primary Investigator: László Kovács

 

Norway

Oslo University Hospital
Oslo
Norway

Primary Investigator: Anna Hoffmann-Vold
Secondary Investigators: Øyvind Midtvedt, Øyvind Molberg

Italy

Marche Polytechnic University
Ancona, AN
Italy

Primary Investigator: Armando Gabrielli
Secondary Investigator: Gianluca Moroncini


Universita di Bari
Bari, BA
Italy

Primary Investigator: Giovanni Lapadula


Universita di Cagliari
Cagliari, CA
Italy

Primary Investigator: Alberto Cauli
Secondary Investigator: Alessandra Vacca


University of Florence
Firenze, FI
Italy

Primary Investigator: Marco Matucci-Cerinic


University of Genoa
Genova, GE
Italy

Primary Investigator: Maurizio Cutolo
Secondary Investigator: Alberto Sulli


University of Roma Sapienza
Roma, RM
Italy

Primary Investigator: Valeria Riccieri


Università degli Studi di Milano, Clinical Rheumatology, Instituto Gaetano Pini
Milan, MI
Italy

Primary Investigator: Francesca Ingegnoli


Università degli Studi di Milano. Scleroderma Unit, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico di Milano

Milan, MI
Italy

Primary Investigator: Lorenzo Beretta
Secondary Investigator: Chiara Bellocchi

Poland

Medical University of Warsaw
Warsaw
Poland

Primary Investigator: Lidia Rudnicka


 

Netherlands

Leiden University
Leiden, RM
Netherlands

Primary Investigator: J.K. De-Vries Bouwstra


Radboud University Medical Centre
Nijmegen
Netherlands

Primary Investigator: Madelon Vonk
Secondary Investigators: Hanneke Knaapen, Fleur Poelkens, Frank van den Hoogen


University of Groningen
Groningen
Netherlands

Primary Investigator: Udo Mulder
Secondary Investigator: Arie van Roon


Utrecht University
Utrecht
Netherlands

Primary Investigator: Jacob M. van Laar
Secondary Investigators: Julia Spierings, Femke van Rhijn


VU University, Amsterdam
Amsterdam
Netherlands

Primary Investigator: AE Voskuyl

Romania

Grigore T Popa University of Medicine and Pharmacy Iasi
Iasi
Romania

Primary Investigator: Codrina Ancuta
Secondary Investigator: Cristina Pomirleanu


 

Spain

Hospital Universitario de 12 Octubre
Madrid
Spain

Primary Investigator: Patricia E. Carreira
Secondary Investigators: Maria Martin, Beatriz Joven


Hospital Universitario Ramón y Cajal
Madrid
Spain

Primary Investigator: Carlos de la Puente Bujidos
Secondary Investigator:Walter A. Sifuentes Giraldo, Mónica Vázquez Díaz

Sweden

The Sahlgrenska University Hospital
Gothenburg
Sweden

Primary Investigator: Anna-Karin H. Ekwall
Secondary Investigators: Egidija Sakiniene, Cristina Maglio, Anna Rudin


Skåne University Hospital
Lund
Sweden

Primary Investigator: Roger Hesselstrand
Secondary Investigators: Dirk Wuttge, Frank Wollheim, Kristofer Andreasson

Switzerland

Neuchâtel Junior College
Neuchâtel
Switzerland

Primary Investigator: Richard Meehan


University Hospital of Zürich
Zürich
Switzerland

Primary Investigator: Oliver Distler
Secondary Investigators: Rucsandra Dobrota, Britta Maurer

Turkey

Istanbul University
Istanbul
Turkey

Primary Investigator: Murat Inanc

UK

Cambridge University Hospitals
Cambridge
England
UK

Primary Investigator: Frances Hall


Newcastle University Hospitals NHS
Newcastle Upon Tyne
England
UK

Primary Investigator: Bridget Griffiths
Secondary Investigator: Josie Vila


Nottingham University Hospitals NHS Trust
Nottingham
England
UK

Primary Investigator: Peter Lanyon


Royal Free Hospital London
London
England
UK

Primary Investigator: Chris Denton
Secondary Investigators: Maria Fonseca, Voon Ong, Pamela Yeomans


Royal United Hospital Bath
Bath
England
UK

Primary Investigator: John Pauling
Secondary Investigators: Neil McHugh, Victoria Flower


Sheffield University Medical School
Sheffield
England
UK

Primary Investigator: Mohammed Akil
Secondary Investigators: Michael Hughes, Rachel Kilding, Kar-Ping Kuet, Stuart Carter


University Hospitals Birmingham
Birmingham
England
UK

Primary Investigator: Emma Derrett-Smith


University of Leeds

Leeds 
England
UK

Primary Investigator: Francesco Del Galdo
Secondary Investigators: Paul Emery, Maya Buch


University of Dundee
Dundee
Scotland
UK

Primary Investigator: Jill Belch
Secondary Investigators: Faisel Khan, Gwen Kennedy, Colin Baines


University of Liverpool
Liverpool
England
UK

Primary Investigator: Marina Anderson


University of Manchester
Manchester 
England
UK

Primary Investigator: Ariane Herrick
Secondary Investigator: Muditha Samaranayaka


 

Ukraine

L'viv National Medical University
L'viv
Ukraine

Primary Investigator: Oleg Nadashkevich

Asia

China

The First Affiliated Hospital of Nanchang University
Nanchang, Jiangxi
China

Primary Investigator: Yunqin Ma

India

Post Graduate Institute of Medical Education and Research
Chandigarh
India

Primary Investigator: Shefali K. Sharma


Kennisha Rheumatology Care & Diagnostics
Mumbai
Maharashtra
India

Primary Investigator: Kaushik Bhojani
Secondary Investigators: Neelu Bhojani, Shubhada Kalke


Sanjay Gandhi Postgraduate Institute of Medical Sciences
Lucknow
Uttar PradeshIndia
India

Primary Investigator: Able Lawrence

Israel

Rambam Healthcare
Haifa
Israel

Primary Investigator: Alexandra Balbir-Gurman
Secondary Investigator: Yolanda Braun-Moscovici

Japan

Kanazawa University
Kanazawa
Japan

Primary Investigator: Kazuhiko Takehara


Keio University
Mita
Minato-ku
Japan

Primary Investigator: Hidekata Yasuoka


Kumamoto University
Kumamoto
Japan

Primary Investigator: Hironobu Ihn
Secondary Investigator: Takamitsu Makino


Nippon Medical School
Tokyo
Japan

Primary Investigator: Masataka Kuwana
Secondary Investigator: Yuichiro Shirai


Osaka Medical College
Takatsuki
Japan

Primary Investigator: Tohru Takeuchi


Osaka University

Suita
Japan

Primary Investigator: Manabu Fujimoto


Tokyo Women's Medical University
Tokyo
Japan

Primary Investigator: Yasushi Kawaguchi
Secondary Investigator: Kae Takagi


University of Fukui
Fukui
Japan

Primary Investigator: Minoru Hasegawa
Secondary Investigators: Takenao Chino, Haruka Koizumo, Noritaka Oyama, Akria Utsunomiya


University of Tokyo
Tokyo
Japan

Primary Investigator: Shinichi Sato
Secondary Investigators: Yoshihide Asano, Ayumi Yoshizaki


University of Tsukuba
Tsukuba
Japan

Primary Investigator
Secondary Investigator: Naoko Okiyama

Pakistan

Shaikh Zayed Postgraduate Medical Institute
Lahore
Pakistan

Primary Investigator: Tafazzul Mahmud

Singapore

Singapore General Hospital
Singapore

Primary Investigator: Andrea Low Hsiu Ling
Secondary Investigators: Sue-Ann Ng, Cassandra Hong, Maria Noviani

South Korea

Seoul National University
Seoul
South Korea

Primary Investigator: Eun Bong Lee
Secondary Investigators:Jin Kyun Park, Jun Won Park, Eun Hye Park


University of Ulsan, Asan Medical Center
Ulsan
South Korea

Primary Investigator: Chan Keun Lee

Malaysia

Hospital Selayang
Selangor
Malaysia

Primary Investigator: Shereen Ch'ng
Secondary Investigators:Ing Soo Lau, Azmillah Rosman, Mollyza Zain, Habibah Yusoof, Hazlyna Baharuddin, Norliza Zainuddin

Myanmar

University of Medicine
Yangon
Myanmar

Primary Investigator: Khin Lei Lei Aung
Secondary Investigators: Chit Soe, Cho Mar Lwin, Yin Minn Soe, Wai Wai Lwin Zaw

Australia

Adelaide

Royal Adelaide Hospital
Adelaide
Australia

Primary Investigator: Susanna Proudman
Secondary Investigator: Jenny Walker

New South Wales

St. Vincent's Hospital Sydney
Darlinghurst
Australia

Primary Investigator: Ross Penglase
Secondary Investigators: Laila Girgis, John Moore, David Ma

Melbourne

Monash Health
Melbourne
Australia

Primary Investigator: Joanne Sahhar


St. Vincent's Health

Melbourne
Australia

Primary Investigator: Wendy Stevens
Secondary Investigators: Mandana Nikpour, Laura Ross, Nava Ferdowsi, Kathleen Morrisroe

Murdoch

Fiona Stanley Hospital
Murdoch
Australia

Primary Investigator: Lauren Host
Secondary Investigator: Janet Roddy

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