Members
North America
USA
University of Alabama at Birmingham
Birmingham, AL
USA
Primary Investigator: Amanda Schnell
Secondary Investigators: S. Louis Bridges, Jr., S. Ledbetter
Mayo Clinic, Arizona
Scottsdale, AZ
USA
Primary Investigator: Leroy Griffing
Secondary Investigator: Vivek Nagaraja
University of Arizona Arthritis Center
Tucson, AZ
USA
Primary Investigator: Raphael Grau
Cedars-Sinai Scleroderma Center
Los Angeles, CA
USA
Primary Investigator: Francesco Boin
Secondary Investigator: Nunzio Bottini
Pacific Arthritis
Los Angeles, CA
USA
Primary Investigator: Daniel Furst
Stanford University
Stanford, CA
USA
Primary Investigator: Lorinda Chung
Secondary Investigators: David Fiorentino, Tamiko Katsumoto
University of California, Los Angeles
Los Angeles, CA
USA
Primary Investigator: Philip Clements
Secondary Investigators: Suzanne Kafaja, Elizabeth Volkmann
National Jewish Health
Denver, CO
USA
Primary Investigator: Mehrnaz Maleki Fischbach
Secondary Investigators: Richard Meehan, Jeffery Swigris, Joshua Solomon, Isabell Amigues, Amy Olson, Rebecca Keith, Liudmila Kastsianok
University of Colorado
Aurora, CO
USA
Primary Investigator: Jason Kolfenbach
Secondary Investigator: Melissa Griffith
University of Connecticut
Mansfield, CT
USA
Primary Investigator: Santhanam Lakshminarayanan
Yale University School of Medicine
New Haven, CT
USA
Primary Investigator: Monique Hinchcliff
Secondary Investigator: Miruna Carnaru
The George Washington University
Washington, DC
USA
Primary Investigator: Victoria Shanmugam
Georgetown University Medical Center
Washington, DC
USA
Primary Investigator: Virginia Steen
University of Miami Miller School of Medecine
Miami, FL
USA
Primary Investigator: Eric Greidinger
Secondary Investigators: Dana P. Ascherman, Marilyn K. Glassberg, Bethly Aubourg, Maria Boulina, Elana Oberstein
Northwestern University
Chicago, IL
USA
Primary Investigator: Carrie Richardson
Secondary Investigators: Jane Dematte D'Amico, Mary Carns
University of Illinois, Chicago
Chicago, IL
USA
Primary Investigator: Nadera Sweiss
Secondary Investigator: Suncica Volkov
Louisiana State University Shreveport
Shreveport, LA
USA
Primary Investigator: Samina Hayat
Tulane University School of Medecine
New Orleans, LA
USA
Primary Investigator: Lesley Ann Saketkoo
Secondary Investigator: Matt Lammi
John Hopkins Medecine
Baltimore, MD
USA
Primary Investigator: Fredrick Wigley
Secondary Investigators: Laura Hummers, Zsuzsanna McMahan, Julie Paik, Ami Shah, Christopher Mecoli
Boston University
Boston, MA
USA
Primary Investigator: Andreea Bujor
Secondary Investigator: Marcin Trojanowski
Massachusetts General Hospital
Boston, MA
USA
Primary Investigator: Flavia Castelino
Secondary Investigators: Marcy Bolster, Sarah Schoenfeld
University of Michigan
Ann Arbor, MI
USA
Primary Investigator: Dinesh Khanna
Secondary Investigator: Vivek Nagaraja
West Michigan Rheumatology, PLLC
Grand Rapids, MI
USA
Primary Investigator: Richard Martin
Secondary Investigators: Andrew J. Head, Aaron T. Eggebeen, Eric T. Slavin
Mayo Clinic, Minnesota
Rochester, MN
USA
Primary Investigator: Ashima Makol
Secondary Investigators: Thomas Osbron, Shreyasee Amin, Alicia Hinze
University of Minnesota Twin Cities
Minneapolis, MN
USA
Primary Investigator: Jerry Molitor
University of Nebraska Medical Center
Omaha, NE
USA
Primary Investigator: Marcus Snow
Secondary Investigator: Michael Feely
Dartmouth College
Hanover, NH
USA
Primary Investigator: Michael Whitfield
Secondary Investigators: Nicole Orzechowski, Swamidiba Ayyappa
Rutgers Robert Wood Johnson Medical School
New Brunswick, NJ
USA
Primary Investigator: Vivien Hsu
Secondary Investigator: Deborah McCloskey
Albany Medical College
Albany, NY
USA
Primary Investigator: Lee Shapiro
Secondary Investigators: Vivek Mehta, Jessica Farrell, Roberta Lukasiewicz
Columbia University
New York City, NY
USA
Primary Investigator: Elana Bernstein
Hospital for Special Surgery
New York City, NY
USA
Primary Investigator: Robert Spiera
Secondary Investigators: Jessica Gordon, Elizabeth Soto-Cardona
Northwell Health
Great Neck, NY
USA
Primary Investigator: Sonali Narain
Secondary Investigator: Richard Furie
Duke University School of Medecine
Durham, NC
USA
Primary Investigator: Ankoor Shah
Secondary Investigators: Bill St. Clair, Keith Sullivan
Cleveland Clinic
Cleveland, OH
USA
Primary Investigator: Soumya Chatterjee
University of Cincinnati
Cincinnati, OH
USA
Primary Investigator: Nishant Gupta
Secondary Investigators: Jean Elwing, Gaurav Khanna, Satish Madala, Francis X. McCormack
University of Toledo
Toledo, OH
USA
Primary Investigator: Bashar Kahaleh
Secondary Investigator: Nezam Altorok
Thomas Jefferson University
Philadelphia, PA
USA
Primary Investigator: Sergio Jimenez
Secondary Investigator: Fabian Mendoza
University of Pennsylvania
Philadelphia, PA
USA
Primary Investigator: Peter A. Merkel
Secondary Investigators: Chris Derk, Colin Ligon, Nora Sandorfi
University of Pittsburgh
Pittsburgh, PA
USA
Primary Investigator: Robyn Domsic
Secondary Investigators: Thomas Medsger, Robert Lafyatis, Dana Ivanco
Rhode Island Hospital
Providence, RI
USA
Primary Investigator: Edward Lally
The Medical University of South Carolina
Charleston, SC
USA
Primary Investigator: Richard Silver
Secondary Investigators: Edwin A. Smith, Faye N. Hant, Celine Ward, Katherine C. Silver, Terrill Huggins, Rahul Argula, Ryan Tedford
Scleroderma Research Consultants
Aiken, South Carolina
USA
Primary Investigator: James Seibold
Secondary Investigators: Laura Carbone, Brian Le
Vanderbilt University
Nashville, TN
USA
Primary Investigator: Leslie Crofford
Secondary Investigators: April Barnado, Lisa Lancaster, Kristine Phillips
University of Texas, McGovern Medical School
Houston, TX
USA
Primary Investigator: Maureen Mayes
Secondary Investigators: Shervin Assassi, Brian Skaug
University of Utah
Salt Lake City, UT
USA
Primary Investigator: Tracy Frech
Seattle Rheumatology Associates
Seattle, WA
USA
Primary Investigator: Daniel Furst
Medical College of Wisconsin
Milwaukee, WI
USA
Primary Investigator: Mary Ellen Csuka
Secondary Investigators: David Gazeley, Amy Blair
Canada
University of Alberta
Edmonton, AB
Canada
Primary Investigator: Mohammed Osman
Secondary Investigator: Niall Jones
University of Calgary
Calgary, AB
Canada
Primary Investigator: Sharon LeClercq
Secondary Investigators: Marvin Fritzler, Jan Storek, Caylib Durand, Kareem Jamani
Dalhousie University
Halifax, NS
Canada
Primary Investigator: Evelyn Sutton
University of Toronto
Toronto, ON
Canada
Primary investigator: Sindhu Johnson MD PhD
Secondary investigators: Edward Keystone, Zareen Ahmad
University of Western Ontario
London, ON
Canada
Primary Investigator: Janet Pope
Secondary Investigators: Jason Lee, Andreu Fernandez
University of Montreal
Montreal, QC
Canada
Primary Investigator: Jean Luc Senecal
Secondary Investigators: Tamara Grodzicky, Martial Koenig, Sabrina Hoa, Eric Rich
Montreal Jewish General Hospital
Montreal, QC
Canada
Primary Investigator: Murray Baron
Secondary Investigators: Marie Hudson, Genevieve Gyger
Mexico
Instituto Mexicano del Seguro Social
San Luis Potosi
Mexico
Primary Investigator: Jair Arturo Avila Sanchez
Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran
Mexico City
Mexico
Primary Investigator: Tatiana Rodriguez
Secondary Investigators: Gabriela A. Hernandez-Molina, Hilda E. Fragoso-Loyo
South America
Federal University of São Paulo
São Paulo
Brazil
Primary Investigator: Cristiane Kayser
Rio de Janeiro State University
Rio de Janeiro
Brazil
Primary Investigator: Veronica Silva Vilela
Secondary Investigator: Claudia Henrique da Costa, Roger Levy, Rogerio Rufino
Pontificia Universidad Católica de Chile
Santiago
Chile
Primary Investigator: Antonia Maria Valenzuela Vergara
Secondary Investigators: Cristian Vera Kellet, Carolina Llanos
Europe
Ghent University
Gent
Belgium
Primary Investigator: Vanessa Smith
University Hospital Leuven
Leuven
Belgium
Primary Investigator: Ellen De Langhe
Secondary Investigators: Jan Lenaerts, Rene Westhovens
University of Split
Split
Croatia
Primary Investigator: Mislav Radic
Aarhus University Hospital
Aarhus
Denmark
Primary Investigator: Anne Braae Olesen
University Hospital of Copenhagen
Copenhagen
Denmark
Primary Investigator: Soren Jacobsen
Secondary Investigators: Christopher Tandrup Nielsen, Mette Mogensen
Hamburger Zentrum für Kinder- und Jugendrheumatologie
Hamburg
Germany
Primary Investigator: Ivan Foeldvari
University of Cologne
Koln
Germany
Primary Investigator: Nico Hunzelmann
Secondary Investigator: Pia Moinzadeh
Assistance Publique Hôpitaux de Paris
Paris
France
Primary Investigator: Luc Mouthon
Secondary Investigator: Yannick Allanore
Centre Hospitalier Régional Université de Lille
Lille Cedex
France
Primary Investigator: Eric Hachulla
Secondary Investigators: David, Launay, Vincent Sobanski, Sébastien Sanges
Centre Hospitalier Universitaire de Rennes
Rennes
France
Primary Investigator: Patrick Jégo
Secondary Investigators: Alain Lescoat, Claire Cazalets, Alice Ballerie
Grenoble University Hospital
Grenoble
France
Primary Investigator: Sophie Blaise
Secondary Investigator: Bernard Imbert, Jean-Luc Cracowski
Strasbourg University Hospital
Strasbourg
France
Primary Investigator: Thierry Martin
Secondary Investigators: Emmanuel Chatelus, Vincent Poindron, Jean Sibilia
Université de Nantes
Nantes
France
Primary Investigator: Christan Agard
University of Paris V, Faculty of Medecine
Paris
France
Primary Investigator: Andre Kahan
University of Szeged
Szeged
Hungary
Primary Investigator: László Kovács
Oslo University Hospital
Oslo
Norway
Primary Investigator: Anna Hoffmann-Vold
Secondary Investigators: Øyvind Midtvedt, Øyvind Molberg
IRCCS San Raffaele Hospital, Vita-Salute San Raffaele University
Milan, MI
Italy
Primary Investigator: Lorenzo Dagna
Secondary Investigators: Campochiaro Corrado, Giacomo De Luca
Universita di Cagliari
Cagliari, CA
Italy
Primary Investigator: Alberto Cauli
Secondary Investigator: Alessandra Vacca
University of Florence
Firenze, FI
Italy
Primary Investigator: Marco Matucci-Cerinic
Università degli Studi di Milano. Scleroderma Unit, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico di Milano
Milan, MI
Italy
Primary Investigator: Lorenzo Beretta
Secondary Investigator: Chiara Bellocchi
Medical University of Warsaw
Warsaw
Poland
Primary Investigator: Lidia Rudnicka
Leiden University
Leiden, RM
Netherlands
Primary Investigator: J.K. De-Vries Bouwstra
Radboud University Medical Centre
Nijmegen
Netherlands
Primary Investigator: Madelon Vonk
Secondary Investigators: Hanneke Knaapen, Fleur Poelkens, Frank van den Hoogen
University of Groningen
Groningen
Netherlands
Primary Investigator: Udo Mulder
Secondary Investigator: Arie van Roon
Utrecht University
Utrecht
Netherlands
Primary Investigator: Julia Spierings
VU University, Amsterdam
Amsterdam
Netherlands
Primary Investigator: AE Voskuyl
Grigore T Popa University of Medicine and Pharmacy Iasi
Iasi
Romania
Primary Investigator: Codrina Ancuta
Secondary Investigator: Cristina Pomirleanu
Hospital Universitari de la Santa Creu i Sant Pau
Barcelona
Spain
Primary Investigator: Ivan Castellví
Secondary Investigator: José-Luis Tandaipán, Ana-Milena Millán
Hospital Universitario de 12 Octubre
Madrid
Spain
Primary Investigator: Patricia E. Carreira
Secondary Investigators: Maria Martin, Beatriz Joven
The Sahlgrenska University Hospital
Gothenburg
Sweden
Primary Investigator: Anna-Karin H. Ekwall
Secondary Investigators: Egidija Sakiniene, Cristina Maglio, Anna Rudin
Skåne University Hospital
Lund
Sweden
Primary Investigator: Roger Hesselstrand
Secondary Investigators: Dirk Wuttge, Frank Wollheim, Kristofer Andreasson
University Hospital Bern
Bern
Switzerland
Primary Investigator: Britta Mauer
Secondary Investigator: Adela Sarbu, Lisa Christ
University Hospital of Zürich
Zürich
Switzerland
Primary Investigator: Oliver Distler
Secondary Investigators: Rucsandra Dobrota, Britta Maurer
Istanbul University
Istanbul
Turkey
Primary Investigator: Murat Inanc
Alder Hey Children's NHS Foundation Trust & University of Liverpool
Liverpool
England
UK
Primary Investigator: Clare Pain
Cambridge University Hospitals
Cambridge
England
UK
Primary Investigator: Frances Hall
Newcastle University Hospitals NHS
Newcastle Upon Tyne
England
UK
Primary Investigator: Bridget Griffiths
Secondary Investigator: Josie Vila
Nottingham University Hospitals NHS Trust
Nottingham
England
UK
Primary Investigator: Peter Lanyon
Royal Free Hospital London
London
England
UK
Primary Investigator: Chris Denton
Secondary Investigators: Maria Fonseca, Voon Ong, Pamela Yeomans
Royal United Hospital Bath
Bath
England
UK
Primary Investigator: Victoria Flower
Sheffield University Medical School
Sheffield
England
UK
Primary Investigator: Mohammed Akil
Secondary Investigators: Michael Hughes, Rachel Kilding, Kar-Ping Kuet, Stuart Carter
University Hospitals Birmingham
Birmingham
England
UK
Primary Investigator: Emma Derrett-Smith
University of Leeds
Leeds
England
UK
Primary Investigator: Francesco Del Galdo
Secondary Investigators: Paul Emery, Maya Buch
University of Dundee
Dundee
Scotland
UK
Primary Investigator: Jill Belch
Secondary Investigators: Faisel Khan, Gwen Kennedy, Colin Baines
University of Liverpool
Liverpool
England
UK
Primary Investigator: Marina Anderson
Salford Care Organisation, University of Manchester
Manchester
England
UK
Primary Investigator: Michael Hughes
Secondary Investigator: Ariane Herrick, Muditha Samaranayaka
L'viv National Medical University
L'viv
Ukraine
Primary Investigator: Oleg Nadashkevich
Asia
The First Affiliated Hospital of Nanchang University
Nanchang, Jiangxi
China
Primary Investigator: Yunqin Ma
Post Graduate Institute of Medical Education and Research
Chandigarh
India
Primary Investigator: Shefali K. Sharma
Kennisha Rheumatology Care & Diagnostics
Mumbai
Maharashtra
India
Primary Investigator: Kaushik Bhojani
Secondary Investigators: Neelu Bhojani, Shubhada Kalke
Sanjay Gandhi Postgraduate Institute of Medical Sciences
Lucknow
Uttar PradeshIndia
India
Primary Investigator: Able Lawrence
Rambam Healthcare
Haifa
Israel
Primary Investigator: Alexandra Balbir-Gurman
Secondary Investigator: Yolanda Braun-Moscovici
Kanazawa University
Kanazawa
Japan
Primary Investigator: Kazuhiko Takehara
Keio University
Mita
Minato-ku
Japan
Primary Investigator: Hidekata Yasuoka
Kumamoto University
Kumamoto
Japan
Primary Investigator: Hironobu Ihn
Secondary Investigator: Takamitsu Makino
Nippon Medical School
Tokyo
Japan
Primary Investigator: Masataka Kuwana
Secondary Investigator: Yuichiro Shirai
Osaka Medical College
Takatsuki
Japan
Primary Investigator: Tohru Takeuchi
Osaka University
Suita
Japan
Primary Investigator: Manabu Fujimoto
Tokyo Women's Medical University
Tokyo
Japan
Primary Investigator: Yasushi Kawaguchi
Secondary Investigator: Kae Takagi
University of Fukui
Fukui
Japan
Primary Investigator: Minoru Hasegawa
Secondary Investigators: Takenao Chino, Haruka Koizumo, Noritaka Oyama, Akria Utsunomiya
University of Tokyo
Tokyo
Japan
Primary Investigator: Shinichi Sato
Secondary Investigators: Yoshihide Asano, Ayumi Yoshizaki
University of Tsukuba
Tsukuba
Japan
Primary Investigator:
Secondary Investigator: Naoko Okiyama
Shaikh Zayed Postgraduate Medical Institute
Lahore
Pakistan
Primary Investigator: Tafazzul Mahmud
Singapore General Hospital
Singapore
Primary Investigator: Andrea Low Hsiu Ling
Secondary Investigators: Sue-Ann Ng, Cassandra Hong, Maria Noviani, Sue-Ann Ng Pei Lun
Seoul National University
Seoul
South Korea
Primary Investigator: Eun Bong Lee
Secondary Investigators:Jin Kyun Park, Jun Won Park, Eun Hye Park
University of Ulsan, Asan Medical Center
Ulsan
South Korea
Primary Investigator: Chan Keun Lee
Hospital Selayang
Selangor
Malaysia
Primary Investigator: Shereen Ch'ng
Secondary Investigators:Ing Soo Lau, Azmillah Rosman, Mollyza Zain, Habibah Yusoof, Hazlyna Baharuddin, Norliza Zainuddin
University of Medicine
Yangon
Myanmar
Primary Investigator: Khin Lei Lei Aung
Secondary Investigators: Chit Soe, Cho Mar Lwin, Yin Minn Soe, Wai Wai Lwin Zaw
Australia
Royal Adelaide Hospital
Adelaide
Australia
Primary Investigator: Susanna Proudman
Secondary Investigator: Jenny Walker
St. Vincent's Hospital Sydney
Darlinghurst
Australia
Primary Investigator: Ross Penglase
Secondary Investigators: Laila Girgis, John Moore, David Ma
Monash Health
Melbourne
Australia
Primary Investigator: Joanne Sahhar
St. Vincent's Health
Melbourne
Australia
Primary Investigator: Wendy Stevens
Secondary Investigators: Mandana Nikpour, Laura Ross, Nava Ferdowsi, Kathleen Morrisroe
Fiona Stanley Hospital
Murdoch
Australia
Primary Investigator: Lauren Host
Secondary Investigator: Janet Roddy