Members

North America

USA

Alabama

University of Alabama at Birmingham
Birmingham, AL
USA

Primary Investigator: TBC

Arizona

Mayo Clinic, Arizona
Scottsdale, AZ
USA

Primary Investigator: Leroy Griffing


University of Arizona Arthritis Center
Tucson, AZ
USA

Primary Investigator: Raphael Grau

California

Pacific Arthritis
Los Angeles, CA
USA

Primary Investigator: Daniel Furst


Stanford University
Stanford, CA
USA

Primary Investigator: Lorinda Chung
Secondary Investigator: David Fiorentino


University of California, Los Angeles
Los Angeles, CA
USA

Primary Investigator: Philip Clements
Secondary Investigators: Suzanne Kafaja, Elizabeth Volkmann


University of California, San Francisco
San Francisco, CA
USA

Primary Investigator: Francesco Boin
Secondary Investigators: Kari Connolly, Anna Haemel 

Colorado

National Jewish Health
Denver, CO
USA

Primary Investigator: Mehrnaz Maleki Fischbach
Secondary Investigators: Richard Meehan, Jeffery Swigris, Joshua Solomon, Isabell Amigues, Amy Olson, Rebecca Keith, Liudmila Kastsianok


University of Colorado
Boulder, CO

USA

Primary Investigator: Aryeh Fischer
Secondary Investigator: Jason Kolfenbach

Connecticut

University of Connecticut
Mansfield, CT
USA

Primary Investigator: Santhanam Lakshminarayanan

District of Columbia

The George Washington University
Washington, DC
USA

Primary Investigator: Victoria Shanmugam


Georgetown University Medical Center
Washington, DC
USA

Primary Investigator: Virginia Steen

Florida

University of Miami Miller School of Medecine
Miami, FL
USA

Primary Investigator: Eric Greidinger
Secondary Investigators: Dana P. Ascherman, Marilyn K. Glassberg, Bethly Aubourg, Maria Boulina, Elana Oberstein

Illinois

Northwestern University
Chicago, IL
USA

Primary Investigator: John Varga
Secondary Investigators: Darren Brenner, Michael Cuttica, Jane D'Amico, Benjamin Freed, Cybelle Ghossein, Benjamin Korman, Arthur Mandelin, Roberta Marangoni, Sanjiv Shah, Sophia Weinman, Mary Carns, Kathleen Aren


University of Illinois, Chicago
Chicago, IL
USA

Primary Investigator: Nadera Sweiss
Secondary Investigator: Suncica Volkov

Louisiana

Louisiana State University
Baton Rouge, LA
USA

Primary Investigator: Samina Hayat


Tulane University School of Medecine
New Orleans, LA
USA

Primary Investigator: Lesley Ann Saketkoo
Secondary Investigator: Joseph Lasky

Maryland

John Hopkins Medecine
Baltimore, MD
USA

Primary Investigator: Fredrick Wigley
Secondary Investigators: Laura Hummers, Zsuzsanna McMahan, Julie Paik, Ami Shah, Christopher Mecoli

Massachusetts

Boston University
Boston, MA
USA

Primary Investigator: Robert W. Simms


Massachusetts General Hospital
Boston, MA
USA

Primary Investigator: Flavia Castelino
Secondary Investigators: Marcy Bolster, Sarah Schoenfeld

Michigan

University of Michigan
Ann Arbor, MI
USA

Primary Investigator: Dinesh Khanna
Secondary Investigator: Vivek Nagaraja


West Michigan Rheumatology, PLLC
Grand Rapids, MI
USA

Primary Investigator: Richard Martin
Secondary Investigators: Andrew J. Head, Aaron T. Eggebeen, Eric T. Slavin

Minnesota

Mayo Clinic, Minnesota
Rochester, MN
USA

Primary Investigator: Ashima Makol
Secondary Investigator: Thomas Osbron, Shreyasee Amin


University of Minnesota Twin Cities
Minneapolis, MN
USA

Primary Investigator: Jerry Molitor

Nebraska

University of Nebraska Medical Center
Omaha, NE
USA

Primary Investigator: Marcus Snow
Secondary Investigator: Michael Feely

New Hampshire

Dartmouth College
Hanover, NH
USA

Primary Investigator: Michael Whitfield
Secondary Investigators: Nicole Orzechowski, Swamidiba Ayyappa

New Jersey

Rutgers Robert Wood Johnson Medical School
New Brunswick, NJ
USA

Primary Investigator: Vivien Hsu
Secondary Investigator: Deborah McCloskey

New York

Albany Medical College
Albany, NY
USA

Primary Investigator: Lee Shapiro
Secondary Investigators: Vivek Mehta, Jessica Farrell, Roberta Lukasiewicz


Columbia University
New York City, NY
USA

Primary Investigator: Elana Bernstein


Hospital for Special Surgery
New York City, NY
USA

Primary Investigator: Robert Spiera
Secondary Investigators: Jessica Gordon, Elizabeth Soto-Cardona


Northwell Health
Great Neck, NY
USA

Primary Investigator: Sonali Narain
Secondary Investigator: Richard Furie

North Carolina

Duke University School of Medecine
Durham, NC
USA

Primary Investigator: Ankoor Shah
Secondary Investigators: Bill St. Clair, Keith Sullivan

Ohio

Cleveland Clinic
Cleveland, OH
USA

Primary Investigator: Soumya Chatterjee


University of Cincinnati
Cincinnati, OH
USA

Primary Investigator: Surabhi Agarwal-Khanna
Secondary Investigators: Jean Elwing, Nishant Gupta, Gaurav Khanna, Satish Madala, Francis X. McCormack


University of Toledo
Toledo, OH
USA

Primary Investigator: Bashar Kahaleh
Secondary Investigator: Nezam Altorok

Pennsylvania

Thomas Jefferson University
Philadelphia, PA
USA

Primary Investigator: Sergio Jimenez
Secondary Investigator: Fabian Mendoza


University of Pennsylvania
Philadelphia, PA
USA

Primary Investigator: Peter A. Merkel
Secondary Investigators: Chris Derk, Colin Ligon, Nora Sandorfi


University of Pittsburgh
Pittsburgh, PA
USA

Primary Investigator: Robyn Domsic
Secondary Investigators: Thomas Medsger, Robert Lafyatis, Dana Ivanco

Rhode Island

Rhode Island Hospital
Providence, RI
USA

Primary Investigator: Edward Lally

South Carolina

The Medical University of South Carolina
Charleston, SC
USA

Primary Investigator: Richard Silver
Secondary Investigators: Edwin A. Smith, Faye N. Hant, Celine Ward, Katherine C. Silver, Terrill Huggins, Rahul Argula, Ryan Tedford


Scleroderma Research Consultants
Aiken, South Carolina
USA

Primary Investigator: James Seibold
Secondary Investigators: Laura Carbone, Brian Le

Tennessee

Vanderbilt University
Nashville, TN
USA

Primary Investigator: Leslie Crofford
Secondary Investigators: April Barnado, Lisa Lancaster, Kristine Phillips

Texas

University of Texas, McGovern Medical School
Houston, TX
USA

Primary Investigator: Maureen Mayes
Secondary Investigators: Shervin Assassi, Brian Skaug

Utah

University of Utah
Salt Lake City, UT
USA

Primary Investigator: Tracy Frech

Washington

Seattle Rheumatology Associates
Seattle, WA
USA

Primary Investigator: Daniel Furst

Wisconsin

Medical College of Wisconsin
Milwaukee, WI
USA

Primary Investigator: Mary Ellen Csuka
Secondary Investigator: Marit Johnson


University of Wisconsin
Madison, WI
USA

Primary Investigator: Kevin McKown

Canada

Alberta

University of Calgary
Calgary, AB
Canada

Primary Investigator: Sharon LeClercq
Secondary Investigators: Marvin Fritzler, Jan Storek, Caylib Durand, Kareem Jamani

Nova Scotia

Dalhousie University
Halifax, NS
Canada

Primary Investigator: Evelyn Sutton

Ontario

University of Toronto
Toronto, ON
Canada

Primary investigator: Sindhu Johnson MD PhD
Secondary investigators: Edward Keystone, Zareen Ahmad


University of Western Ontario
London, ON
Canada

Primary Investigator: Janet Pope
Secondary Investigators: Jason Lee, Andreu Fernandez

Quebec

University of Montreal
Montreal, QC
Canada

Primary Investigator: Jean Luc Senecal
Secondary Investigators: Tamara Grodzicky, Martial Koenig, Sabrina Hoa, Eric Rich


Montreal Jewish General Hospital
Montreal, QC
Canada

Primary Investigator: Murray Baron
Secondary Investigators: Marie Hudson, Genevieve Gyger



Mexico

Mexico City

Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran
Mexico City
Mexico

Primary Investigator: Tatiana Rodriguez
Secondary Investigators: Gabriela A. Hernandez-Molina, Hilda E. Fragoso-Loyo

South America

Argentina

Hospital Italiano de Buenos Aires
Buenos Aires
Argentina

Primary Investigator: Luis Catoggio
Secondary Investigators: Mirtha Sabelli, Marina Scolnik, Enrique Soriano

Brazil

Federal University of São Paulo
São Paulo
Brazil

Primary Investigator: Cristiane Kayser


Rio de Janeiro State University
Rio de Janeiro
Brazil

Primary Investigator: Veronica Silva Vilela
Secondary Investigator: Claudia Henrique da Costa, Roger Levy, Rogerio Rufino 

Chile

Pontificia Universidad Católica de Chile
Santiago
Chile

Primary Investigator: Antonia Maria Valenzuela Vergara
Secondary Investigators: Cristian Vera Kellet, Carolina Llanos

Europe

Belgium

Ghent University
Gent
Belgium

Primary Investigator: Vanessa Smith


University Hospital Leuven
Leuven
Belgium

Primary Investigator: Ellen De Langhe
Secondary Investigators: Jan Lenaerts, Rene Westhovens

Denmark

University Hospital of Copenhagen
Copenhagen
Denmark

Primary Investigator: Soren Jacobsen
Secondary Investigators: Christopher Tandrup Nielsen, Mette Mogensen

France

Assistance Publique Hôpitaux de Paris
Paris
France

Primary Investigator: Luc Mouthon
Secondary Investigator: Yannick Allanore


Centre Hospitalier Régional Université de Lille
Lille Cedex
France

Primary Investigator: Eric Hachulla
Secondary Investigators: David, Launay, Vincent Sobanski, Sébastien Sanges


Hôpital Saint-Louis
Paris
France

Primary Investigator: Dominique Farge


Strasbourg University Hospital
Strasbourg
France

Primary Investigator: Thierry Martin
Secondary Investigators: Emmanuel Chatelus, Vincent Poindron, Jean Sibilia


Université de Nantes
Nantes
France

Primary Investigator: Christan Agard


University of Paris V, Faculty of Medecine
Paris
France

Primary Investigator: Andre Kahan

Germany

Hamburger Zentrum für Kinder- und Jugendrheumatologie
Hamburg
Germany

Primary Investigator: Ivan Foeldvari


University of Cologne
Koln
Germany

Primary Investigator: Nico Hunzelmann
Secondary Investigator: Pia Moinzadeh


University of Erlangen
Erlangen
Germany

Primary Investigator: Jorg Distler

Hungary

Pecs Medical School
Pecs
Hungary

Primary Investigator: Laszlo Czirijack

Ireland

Galway University Hospital
Galway
Ireland

Primary Investigator: Bernadette Lynch


University College Dublin
Dublin
Ireland

Primary Investigator: Douglas Veale

Italy

Marche Polytechnic University
Ancona, AN
Italy

Primary Investigator: Armando Gabrielli
Secondary Investigator: Gianluca Moroncini


Università degli Studi della Campania Luigi Vanvitelli
Santa Maria Capua Vetere, CE
Italy

Primary Investigator: Gabriele Valentini
Secondary Investigator: Antonella Riccardi, Veronica Giacco, Valentina Messiniti, Rosaria Irace


Universita di Bari
Bari, BA
Italy

Primary Investigator: Giovanni Lapadula


Universita di Cagliari
Cagliari, CA
Italy

Primary Investigator: Alessandro Mathieu
Secondary Investigator: Alessandra Vacca


University of Florence
Firenze, FI
Italy

Primary Investigator: Marco Matucci-Cerinic


University of Genoa
Genova, GE
Italy

Primary Investigator: Maurizio Cutolo
Secondary Investigator: Alberto Sulli


University of Roma Sapienza
Roma, RM
Italy

Primary Investigator: Valeria Riccieri


Università degli Studi di Milano, Clinical Rheumatology, Instituto Gaetano Pini
Milan, MI
Italy

Primary Investigator: Francesca Ingegnoli


Università degli Studi di Milano. Scleroderma Unit, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico di Milano

Milan, MI
Italy

Primary Investigator: Lorenzo Beretta
Secondary Investigator: Chiara Bellocchi

Netherlands

Leiden University
Leiden, RM
Netherlands

Primary Investigator: J.K. De-Vries Bouwstra


Radboud University Medical Centre
Nijmegen
Netherlands

Primary Investigator: Madelon Vonk
Secondary Investigators: Hanneke Knaapen, Fleur Poelkens, Frank van den Hoogen


Utrecht University
Utrecht
Netherlands

Primary Investigator: Jacob M. van Laar
Secondary Investigators: Julia Spierings, Femke van Rhijn


VU University, Amsterdam
Amsterdam
Netherlands

Primary Investigator: AE Voskuyl

Spain

Hospital Universitario Ramón y Cajal
Madrid
Spain

Primary Investigator: Carlos de la Puente Bujidos
Secondary Investigator:Walter A. Sifuentes Giraldo, Mónica Vázquez Díaz

Sweden

Lund University
Lund
Sweden

Primary Investigator: Roger Hesselstrand
Secondary Investigators: Dirk Wuttge, Frank Wollheim, Kristofer Andreasson

Switzerland

Neuchâtel Junior College
Neuchâtel
Switzerland

Primary Investigator: Richard Meehan


University Hospital of Zürich
Zürich
Switzerland

Primary Investigator: Oliver Distler
Secondary Investigators: Rucsandra Dobrota, Britta Maurer

UK

Royal Free Hospital London
London
England
UK

Primary Investigator: Chris Denton
Secondary Investigators: Maria Fonseca, Voon Ong, Pamela Yeomans


Royal United Hospital Bath
Bath
England
UK

Primary Investigator: John Pauling
Secondary Investigators: Neil McHugh, Victoria Flower


University of Leeds
Leeds 
England
UK

Primary Investigator: Francesco Del Galdo
Secondary Investigators: Paul Emery, Maya Buch


University of Dundee
Dundee
Scotland
UK

Primary Investigator: Jill Belch
Secondary Investigators: Faisel Khan, Gwen Kennedy, Colin Baines


University of Liverpool
Liverpool
England
UK

Primary Investigator: Marina Anderson


University of Manchester
Manchester 
England
UK

Primary Investigator: Ariane Herrick
Secondary Investigator: Muditha Samaranayaka


 

Turkey

Istanbul University
Istanbul
Turkey

Primary Investigator: Murat Inanc

Ukraine

L'viv National Medical University
L'viv
Ukraine

Primary Investigator: Oleg Nadashkevich

Asia

China

Ghent University
Gent
Belgium

Primary Investigator: Vanessa Smith


The First Affiliated Hospital of Nanchang University
Nanchang, Jiangxi
China

Primary Investigator: Yunqin Ma

India

Kennisha Rheumatology Care & Diagnostics
Mumbai
Maharashtra
India

Primary Investigator: Kaushik Bhojani
Secondary Investigators: Neelu Bhojani, Shubhada Kalke


Sanjay Gandhi Postgraduate Institute of Medical Sciences
Lucknow
Uttar PradeshIndia
India

Primary Investigator: Able Lawrence

Israel

Rambam Healthcare
Haifa
Israel

Primary Investigator: Vika Shataylo

Japan

Kanazawa University
Kanazawa
Japan

Primary Investigator: Kazuhiko Takehara


Keio University
Mita
Minato-ku
Japan

Primary Investigator: Hidekata Yasuoka


Kumamoto University
Kumamoto
Japan

Primary Investigator: Hironobu Ihn
Secondary Investigator: Takamitsu Makino


Nippon Medical School
Tokyo
Japan

Primary Investigator: Masataka Kuwana
Secondary Investigator: Yuichiro Shirai


Osaka Medical College
Takatsuki
Japan

Primary Investigator: Tohru Takeuchi


Tokyo Women's Medical University
Tokyo
Japan

Primary Investigator: Yasushi Kawaguchi
Secondary Investigator: Kae Takagi


University of Fukui
Fukui
Japan

Primary Investigator: Minoru Hasegawa
Secondary Investigators: Takenao Chino, Haruka Koizumo, Noritaka Oyama, Akria Utsunomiya


University of Tokyo
Tokyo
Japan

Primary Investigator: Shinichi Sato
Secondary Investigators: Yoshihide Asano, Ayumi Yoshizaki


University of Tsukuba
Tsukuba
Japan

Primary Investigator: Manabu Fujimoto
Secondary Investigator: Naoko Okiyama

Pakistan

Shaikh Zayed Postgraduate Medical Institute
Lahore
Pakistan

Primary Investigator: Tafazzul Mahmud

Singapore

Singapore General Hospital
Singapore

Primary Investigator: Andrea Low Hsiu Ling
Secondary Investigators: Sue-Ann Ng, Cassandra Hong, Maria Noviani

South Korea

Seoul National University
Seoul
South Korea

Primary Investigator: Eun Bong Lee
Secondary Investigators:Jin Kyun Park, Jun Won Park, Eun Hye Park


University of Ulsan, Asan Medical Center
Ulsan
South Korea

Primary Investigator: Chan Keun Lee

Malaysia

Hospital Selayang
Selangor
Malaysia

Primary Investigator: Shereen Ch'ng
Secondary Investigators:Ing Soo Lau, Azmillah Rosman, Mollyza Zain, Habibah Yusoof, Hazlyna Baharuddin, Norliza Zainuddin

Myanmar

University of Medicine
Yangon
Myanmar

Primary Investigator: Khin Lei Lei Aung
Secondary Investigators: Chit Soe, Cho Mar Lwin, Yin Minn Soe, Wai Wai Lwin Zaw

Australia

Adelaide

Royal Adelaide Hospital
Adelaide
Australia

Primary Investigator: Susanna Proudman
Secondary Investigator: Jenny Walker

Melbourne

St. Vincent's Health
Melbourne
Australia

Primary Investigator: Wendy Stevens
Secondary Investigators: Mandana Nikpour, Laura Ross, Nava Ferdowsi, Kathleen Morrisroe

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