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Members

Our Current Membership

We currently have 116 member institutions across 29 countries globally.

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NORTH AMERICA

Canada

McMaster University, Hamilton, ON

Primary Investigator: Maggie Larche

Secondary Investigator:
Nader Khalidi

Montreal Jewish General Hospital, Montreal, QC

Primary Investigator:
Marie Hudson


Secondary Investigators:
Murray Baron
Genevieve Gyger

University of Alberta, Edmonton, AB

Primary Investigator: Mohammed Osman

Secondary Investigator:
Niall Jones

University of Calgary, Calgary, AB

Primary Investigator:
Jan Storek

Secondary Investigators:
Caylib Durand
Kareem Jamani

University of Montreal, Montreal, QC

Primary Investigator:
Jean Luc Senecal

Secondary Investigators:
Tamara Grodzicky
Martial Koenig
Sabrina Hoa
Eric Rich

University of Toronto, Toronto, ON

Primary Investigator:
Sindhu Johnson

Secondary Investigators:
Zareen Ahmad
Hana Alahmari

University of Western Ontario, London, ON

Primary Investigator:
Janet Pope

Secondary Investigators:
Jason Lee
Andreu Fernandez

University of Calgary, Calgary, AB

Primary Investigator:
Jan Storek

Mexico

Instituto Mexicano del Seguro Social, San Luis Potosi

Primary Investigator: Jair Arturo Avila Sanchez

Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran, Mexico City

Primary Investigator: Tatiana Rodriguez

Secondary Investigators:
Gabriela A. Hernandez-Molina
Hilda E. Fragoso-Loyo

USA

Albany Medical College, Albany, NY

Primary Investigator:
Lee Shapiro

Secondary Investigators:
Swati Mehta
Michael Allen

Boston University, Boston, MA

Primary Investigator: Andreea Bujor

Secondary Investigators:
Marcin Trojanowski
Michael York

Cedars-Sinai Scleroderma Center, Los Angeles, CA

Primary Investigator: Francesco Boin

Secondary Investigator: Nunzio. Bottini

Cleveland Clinic, Cleveland, OH

Primary Investigator:
Soumya Chatterjee

Columbia University, New York City, NY

Primary Investigator:
Elana Bernstein

Dartmouth College, Hanover, NH

Primary Investigator: Michael Whitfield

Secondary Investigators:
Swamidiba Ayyappa
Rob Simms

Duke University School of Medecine, Durham, NC

Primary Investigator:
Ankoor Shah

Secondary Investigators:
Bill St. Clair
Keith Sullivan

The George Washington University, Washington, DC

Primary Investigator:
Victoria Shanmugam

Secondary Investigator:

Derek Jones

Georgetown University Medical Center, Washington, DC

Primary Investigator:
Virgina Steen

Hospital for Special Surgery, New York City, NY

Primary Investigator:
Robert Spiera

Secondary Investigators:
Jessica Gordon
Elizabeth Soto-Cardona
S. Louis Bridges
Kimberly Showalter
Genna Braverman

The Johns Hopkins Hospital, Baltimore, MD

Primary Investigator:
Ami Shah

Secondary Investigators:
Laura Hummers
Fredrick Wigley
Julia Paik
Christopher Mecoli
Rachel Wallwork
Ji Soo Kim
Matthew Lammi
Jheneale Grandison

Louisiana State University Shreveport, Shreveport, LA

Primary Investigator:
Samina Hayat

Secondary Investigator:
Edgar Tindall

Massachusetts General Hospital, Boston, MA

Primary Investigator:
Flavia Castelino

Secondary Investigators:

Marcy Bolster
Sarah Schoenfeld

Mayo Clinic, Arizona, Scottsdale, AZ

Primary Investigator:
Vivek Nagaraja

Secondary Investigator: Michael Pham

Mayo Clinic, Minnesota, Rochester, MN

Primary Investigator: Ashima Makol

Secondary Investigators:
Thomas Osbron
Alicia Hinze

Medical College of Georgia at Augusta University, Augusta, GA

Primary Investigator: Elena Schiopu

Secondary Investigators:
Laura Carbone
Varsha Taskar
Hong Shi

Medical College of Wisconsin, Milwaukee, WI

Primary Investigator:
Mary Ellen Csuka

Secondary Investigator:
David Gazeley

Medical University of South Carolina, Charleston, SC

Primary Investigator: Richard Silver

Secondary Investigators:
Edwin A. Smith
Faye N. Hant
Celine Ward
Katherine C. Silver
Terrill Huggins
Rahul Argula
Ryan Tedford

National Jewish Health, Denver, CO

Primary Investigator: Mehrnaz Maleki Fischbach

Secondary Investigators:
Richard Meehan
Jeffery Swigris
Joshua Solomon
Rebecca Keith
Liudmila Kastsianok

Northwell Health, Great Neck, NY

Primary Investigator:
Sonali Narain

Northwestern University, Chicago, IL

Primary Investigator:
Carrie Richardson

Secondary Investigators:
Jane Dematte D'Amico
Mary Carns
Kathleen Aren

Pacific Arthritis, Los Angeles, CA

Primary Investigator:
Daniel Furst

Rutgers Robert Wood Johnson Medical School, New Brunswick, NJ

Primary Investigator:
Vivien Hsu

Secondary Investigator:
David Roofeh

Scleroderma Research Consultants LLC, Aiken, South Carolina

Primary Investigator:
James Seibold

Secondary Investigator:
Brian Le

Seattle Rheumatology Associates, Seattle, WA

Primary Investigator:
Daniel Furst

Stanford University, Stanford, CA

Primary Investigator: Lorinda Chung

Secondary Investigators:
David Fiorentino
Tamiko Katsumoto

Thomas Jefferson University, Philadelphia, PA

Primary Investigator:
Sergio Jimenez

Secondary Investigator: Fabian Mendoza

New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA

Primary Investigator:
Lesley Ann Saketkoo

Secondary Investigator:
Matt Lammi

University of Alabama at Birmingham, Birmingham, AL

Primary Investigator:
Amanda Schnell

Secondary Investigator:
S. Ledbetter Jr.

University of California, Los Angeles, Los Angeles, CA

Primary Investigator:
Philip Clements

Secondary Investigators:
Suzanne Kafaja
Elizabeth Volkmann

University of Chicago, Pritzker School of Medicine, Chicago, IL

Primary Investigator:
Michael Mackli

Secondary Investigator: Iazsmin Ventura

University of Cincinnati, Cincinnati, OH

Primary Investigator: Nishant Gupta

Secondary Investigators:
Jean Elwing
Satish Madala
Francis X. McCormack

University of Colorado, Aurora, CO

Primary Investigator:
Kristen Demoruelle

Secondary Investigator: Melissa Griffith

University of Connecticut, Mansfield, CT

Primary Investigator: Santhanam Lakshminarayana

Secondary Investigator:
Cara Kostacopoulos

University of Illinois at Chicago, Chicago, IL

Primary Investigator:
Nadera Sweiss

Secondary Investigator:
Mina Al-Awqati

University of Iowa, Iowa City, IA

Primary Investigator:
Gulsen Ozen

Secondary Investigator: Hanna Zembrzuska

University of Michigan, Ann Arbor, MI

Primary Investigator:
Dinesh Khanna

Secondary Investigator:
Vivek Nagaraja

University of Minnesota Twin Cities, Minneapolis, MN

Primary Investigator:
Jerry Molitor

University of Nebraska Medical Center, Omaha, NE

Primary Investigator:
Marcus Snow

Secondary Investigator: Michael Feely

University of Pennsylvania, Philadelphia, PA

Primary Investigator:
Peter Merkel

Secondary Investigators:
Chris Derk
Nora Sandorfi
Nikhil Jiwrajka

University of Pittsburgh, Pittsburgh, PA

Primary Investigator:
Robyn Domsic

Secondary Investigators:
Thomas Medsger
Robert Lafyatis
Dana Ivanco
Kathryn Torok
Anna Papazoglou
Cristina Padilla
Eleanor Valenzi

University of Texas, McGovern Medical School, Houston, TX

Primary Investigator: Maureen Mayes

Secondary Investigators:
Shervin Assassi
Brian Skaug
Zsuzsanna McMahan

University of Toledo, Toledo, OH

Primary Investigator:
Bashar Kahaleh

Secondary Investigator: Nezam Altorok

Vanderbilt University Medical Center, Nashville, TN

Primary Investigator:
Tracy Frech

West Michigan Rheumatology, PLLC, Grand Rapids, MI

Primary Investigator: Richard Martin

Secondary Investigators:
Andrew J. Head
Aaron T. Eggebeen
Eric T. Slavin

Yale University School of Medicine, New Haven, CT

Primary Investigator: Monique Hinchcliff

Secondary Investigators:
Miruna Carnaru
Mark Lee

CENTRAL AMERICA

Peurto Rico

University of Puerto Rico, Medical Sciences Campus, San Juan

Primary Investigator:
Grissel Rios

SOUTH AMERICA

Brazil

Federal University of São Paulo, São Paulo

Primary Investigator:
Cristiane Kayser

Rio de Janeiro State University, Rio de Janeiro

Primary Investigator: Veronica Silva Vilela

Secondary Investigators:
Claudia Henrique da Costa
Roger Levy
Rogerio Rufino

Chile

Pontificia Universidad Católica de Chile, Santiago

Primary Investigator: Antonia Maria Valenzuela Vergara

Secondary Investigators:
Cristian Vera Kellet
Carolina Llanos

Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran, Mexico City

Primary Investigator:
Tatiana Rodriguez

EUROPE

Belgium

Ghent University, Ghent

Primary Investigator:
Vanessa Smith

University Hospital Leuven, Leuven

Primary Investigator:
Ellen De Langhe

Secondary Investigators:
Jan Lenaerts
Rene Westhovens

Croatia

University of Split, Split

Primary Investigator:
Mislav Radic

Denmark

Aarhus University Hospital, Aarhus

Primary Investigator:
Anne Braae Olesen

University Hospital of Copenhagen, Copenhagen

Primary Investigator:
Soren Jacobsen

Secondary Investigator: Christopher Tandrup Nielsen

France

Assistance Publique Hôpitaux de Paris, Paris

Primary Investigator: Luc Mouthon

Secondary Investigators:
Yannick Allanore
Benjamin Chaigne

Centre Hospitalier Régional Université de Lille, Lille

Primary Investigator:
Eric Hachulla

Secondary Investigators:
David Launay
Sébastien Sanges

Centre Hospitalier Universitaire de Rennes, Rennes

Primary Investigator:
Alain Lescoat

Secondary Investigators:
Claire Cazalets
Alice Ballerie

Grenoble University Hospital, Grenoble

Primary Investigator: Sophie Blaise
Email: SBlaise@chu-grenoble.fr

Secondary Investigators:
Bernard Imbert
Email: bimbert@chu-grenoble.fr

Jean-Luc Cracowski
Email: jlcracowski@chu-grenoble.fr

Strasbourg University Hospital, Strasbourg

Primary Investigator:
Thierry Martin

Secondary Investigators:
Emmanuel Chatelus
Vincent Poindron
Jean Sibilia

Germany

Hamburger Zentrum für Kinder- und Jugendrheumatologie, Hamburg

Primary Investigator:
Ivan Foeldvari

University of Cologne, Koln

Primary Investigator:
Nico Hunzelmann

Secondary Investigator:
Pia Moinzadeh

Hungary

University of Szeged, Szeged

Primary Investigator:
László Kovács

Secondary Investigators:
Marta Bocskai
Rita Adrienn Hemelein

Italy

Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano, Milan

Primary Investigator:
Lorenzo Beretta

Secondary Investigator: Chiara Bellocchi

IRCCS San Raffaele Hospital. Vita-Salute San Raffaele University, Milan

Primary Investigator: Lorenzo Dagna

Secondary Investigators:
Corrado Campochiaro
Giacomo De Luca

Università degli Studi di Cagliari, Cagliari, CA

Primary Investigator:
Alberto Cauli

Secondary Investigator: Alessandra Vacca

Netherlands

Leiden University, Leiden, RM

Primary Investigator:
Jeska De-Vries Bouwstra

Radboud University Medical Centre, Nijmegen

Primary Investigator: Madelon Vonk

Secondary Investigators:
Hanneke Knaapen
Fleur Poelkens

University of Groningen, Groningen

Primary Investigator:
Udo Mulder

Secondary Investigators:
Arie van Roon
Alja Stel

Utrecht University, Utrecht

Primary Investigator:
Julia Spierings

Vrije Universiteit Amsterdam, Amsterdam

Primary Investigator: Alexandre Voskuyl
Email: ae.voskuyl@vumc.nl

Norway

Oslo University Hospital, Oslo

Primary Investigator:
Anna Hoffmann-Vold

Secondary Investigators:
Øyvind Midtvedt
Øyvind Molberg

Romania

Grigore T. Popa University of Medicine and Pharmacy, Iasi

Primary Investigator:
Codrina Ancuta

Secondary Investigator:
Cristina Pomirleanu

Spain

Universitat Autonoma de Barcelona, Barcelona

Primary Investigator:
Ivan Castellví

Secondary Investigators:
José-Luis Tandaipán
Ana-Milena Millán

Hospital Universitario de 12 Octubre, Madrid

Primary Investigator: Patricia E. Carreir

Secondary Investigators:
Maria Martin
Beatriz Joven

Sweden

Lund University, Lund

Primary Investigator: Kristofer Andréasson

Secondary Investigators:
Frank Wollheim
Kristofer Andreasson

Switzerland

University Hospital Bern, Bern

Primary Investigator:
Britta Mauer

Secondary Investigator:
Lisa Christ

University Hospital of Zürich, Zurich

Primary Investigator:
Oliver Distler

Secondary Investigators:

Rucsandra Dobrota
Cosimo Bruni
Muriel Elhai
Maria-Sinziana Muraru-Carbune
Carmen-Marina Mihai

Turkey

Istanbul University, Istanbul

Primary Investigator:
Murat Inanc

Secondary Investigator:
Yasemin Yalçınkaya

UK

Alder Hey Children's NHS Foundation Trust & University of Liverpool, Liverpool

Primary Investigator:
Clare Pain

North Bristol NHS Trust, Bristol

Primary Investigator:
John D. Pauling

Royal Free Hospital London, London

Primary Investigator:
Chris Denton

Secondary Investigators:
Maria Fonseca
Voon Ong
Pamela Yeomans

Royal United Hospital Bath, Bath

Primary Investigator:
Victoria Flower

Secondary Investigator:
Neil McHugh

Sheffield University Medical School, Sheffield

Primary Investigator: Mohammed Akil

Secondary Investigators:
Michael Hughes
Rachel Kilding
Kar-Ping Kuet
Stuart Carter

University of Leeds, Leeds

Primary Investigator: Francesco Del Galdo

Secondary Investigator:
Paul Emery

University of Dundee, Dundee

Primary Investigator:
Jill Belch

Secondary Investigators:
Faisel Khan
Gwen Kennedy

University of Liverpool, Liverpool

Primary Investigator:
Marina Anderson

Secondary Investigators:
Theresa Barnes
Emma Richardson

Salford Care Organisation, Manchester

Primary Investigator: Michael Hughes

Secondary Investigators:
Ariane Herrick
Muditha Samaranayaka
Andrea Murray

ASIA

India

Kennisha Rheumatology Care & Diagnostics, Mumbai, Maharashtra

Primary Investigator:
Kaushik Bhojani

Secondary Investigator:
Neelu Bhojani
Shubhada Kalke

Post Graduate Institute of Medical Education and Research, Chandigarh

Primary Investigator:
Shefali K Sharma

Israel

Rambam Healthcare, Haifa

Primary Investigator:
Alexandra Balbir-Gurman

Secondary Investigator:
Yolanda Braun-Moscovici

Japan

Fujita Health University, Toyoake

Primary Investigator:
Hidekata Yasuoka

Nippon Medical School, Tokyo

Primary Investigator:
Masataka Kuwana

Secondary Investigator:
Yuichiro Shirai
Email: y-shirai@nms.ac.jp

Osaka University, Suita

Primary Investigator:
Manabu Fujimoto

Tokyo Women's Medical University, Tokyo

Primary Investigator:
Yasushi Kawaguch

Secondary Investigator:
Kae Takagi

University of Fukui, Fukui

Primary Investigator:
Minoru Hasegawa

Secondary Investigators:
Takenao Chino
Haruka Koizumo
Noritaka Oyama
Akria Utsunomiya

University of Tokyo, Tokyo

Primary Investigator:
Shinichi Sato

Secondary Investigator:
Ayumi Yoshizaki

Pakistan

Shaikh Zayed Postgraduate Medical Institute, Lahore

Primary Investigator:
Tafazzul Mahmud

Singapore

Singapore General Hospital, Singapore

Primary Investigator:
Andrea Low Hsiu Ling

Secondary Investigators:
Cassandra Hong
Maria Noviani
Sue-Ann Ng Pei Lun

South Korea

University of Ulsan, Asan Medical Center, Seoul

Primary Investigator:
Chan Keun Lee

Myanmar

University of Medecine, Yangon

Primary Investigator:
Khin Lei Lei Aung

Secondary Investigator:
Chit Soe
Chomar
Yin Minn Soe
Wai Wai Lwin Zaw

AUSTRALASIA

Australia

Royal Adelaide Hospital Adelaide, Adelaide

Primary Investigator:
Susanna Proudman

Secondary Investigator:
Jenny Walker

Royal Prince Alfred Hospital Sydney, University of Sydney, Sydney

Primary Investigator:
Mandana Nikpour

Secondary Investigators:
Matthew Parker
Peter Youssef

St. Vincent's Hospital Sydney, Darlinghurst

Primary Investigator:
Ross Penglase

Secondary Investigators:
Laila Girgis
John Moore
David Ma

St. Vincent's Health, Melbourne

Primary Investigator:
Wendy Stevens

Secondary Investigators:
Mandana Nikpour
Laura Ross
Nava Ferdowsi
Kathleen Morrisroe

Monash Health, Melbourne

Primary Investigator:
Joanne Sahhar

Secondary Investigator:
Gene-Siew Ngian

Fiona Stanley Hospital, Murdoch

Primary Investigator:
Lauren Host